If you want to help the Huntington’s Disease community, we are looking for people willing to join forces and create something together
If you want to start your own association to support HD, we can help you understand how
Your donation will help us supporting individuals and families that are affected by HD
Each May, the Huntington community unites more than ever to share stories and experiences about Huntington’s Disease.
Let’s use this month to let the world know about HD and how strong of a community we can be!
A International Huntington's Association (IHA) é uma organização sem fins lucrativos, feita de associações locais pelo mundo todo. Criada em 1974 por Margaret Guthrie, representa agora mais de 250,000 indivíduos e membros de associações na América do Sul, América do Norte, China, Austrália, Índia, Médio Oriente e África.
A nossa missão é melhorar a vida das pessoas e famílias afetadas globalmente pela Doença de Huntington.
1. Criar conhecimento sobre a Doença de Huntington
2. Ajudar a criar associações locais para que possam garantir apoio local a famílias afetadas pela HD
3. Encorajar a criação de redes entre fronteiras e trocar conhecimentos
4. Promover o envolvimento ativo de pesquisas clínicas
5. Defender o acesso a tratamentos
It’s HD May Awareness Month and HDSI (Huntington’s Disease Society of India) is celebrating it with HD light-up, by lighting up buildings of proeminence in order to express solidarity with HD affected families and to Ler mais...
If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De Schepper, vice president of the Ler mais...
Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin, Ralf Reilman and Anne Rosser Ler mais...
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