Categoria: Notícias

Estudo de fase 2 da Sage Therapeutics reforça o impacto cognitivo da doença de Huntington

Earlier this week Sage Therapeutics announced the results of their SURVEYOR study which quantified the cognitive impact of Huntington’s Disease.  Using the HD-Cognitive Assessment Battery (HD-CAB) they measured the difference […]

Atualização do Médio Oriente e do Norte de África

IHA President Svein Olaf Olsen was keynote speaker on Huntington’s Disease at the MENA Congress for Rare Diseases in Abu Dhabi last month. He spoke of the urgent need to […]

A FDA concede à uniQure a designação de Terapia Avançada em Medicina Regenerativa (RMAT)

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 […]

Programa de Psicoterapia Online Gratuito para Pessoas com DH

Doctors at the University of Reading (UK) have developed a free online psychotherapy programme for people with Huntington’s Disease.  It’s part of a research project that looks at how people […]

Uma nova associação para a Doença de Huntington é financiada no Paquistão - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

A SOM Biotech conclui o processo de recrutamento no estudo de Fase IIb do tratamento da coreia na doença de Huntington

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

A Prilenia planeia apresentar um pedido de autorização de introdução no mercado na UE para a pridopidina na doença de Huntington

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

A descoberta representa uma nova esperança para os doentes de DH

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

A Associação Internacional de Huntington é agora membro da Rare Diseases International!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure anuncia novidades sobre os ensaios clínicos de fase I/II da terapia genética AMT-130 para o tratamento da doença de Huntington

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]