Arquivo

Uma nova associação para a Doença de Huntington é financiada no Paquistão - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

A SOM Biotech conclui o processo de recrutamento no estudo de Fase IIb do tratamento da coreia na doença de Huntington

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

A Prilenia planeia apresentar um pedido de autorização de introdução no mercado na UE para a pridopidina na doença de Huntington

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

A descoberta representa uma nova esperança para os doentes de DH

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

A Associação Internacional de Huntington é agora membro da Rare Diseases International!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure anuncia novidades sobre os ensaios clínicos de fase I/II da terapia genética AMT-130 para o tratamento da doença de Huntington

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Ideias da Comunidade HD: Conhecimento, empatia e encorajamento - A Conferência da EHA inspirou-me

Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an […]

Capacitando Comunidades: Uma Recapitulação das Iniciativas Recentes da Associação Brasileira de Huntington (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

Reunião Plenária da EHDN e Congresso Enroll-HD

A EHDN e o Enroll-HD 2024 são um evento de colaboração que combina a Reunião Plenária da EHDN e o Congresso Enroll-HD. O evento realizar-se-á durante três dias e oferecerá a oportunidade de [...]

Ashley Clarke, defensora da DH, partilha a sua experiência na sede da uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]