01 August 2024
Chronicle of a Relentless Quest: The Making of a Foundation
I belong to the third generation of a family affected by Huntington’s Disease, but it wasn’t until 2024, thanks to the tireless efforts of my second father,...
18 May 2024
We Exist: Tanita Allen recounts her struggle to get access to genetic testing in the United States
In her memoir “We Exist”, Tanita Allen tells of the difficulty she had in having her symptoms correctly diagnosed as Huntington’s Disease. Time and again, she was...
17 November 2023
HD Community Insights: Knowledge, Empathy, and Encouragement - The EHA Conference Inspired Me
Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium....