Globálne úsilie o pomoc ľuďom s Huntingtonovou chorobou
Nezisková zastrešujúca organizácia, ktorú v roku 1974 založila Marjorie Guthrie. V súčasnosti zastupuje viac ako 250 000 jednotlivcov a členských združení na celom svete
Každý rok sa v máji celosvetová komunita Huntingtonovej choroby spája v spoločnom úsilí zvýšiť povedomie o tisícoch ľudí postihnutých Huntingtonovou chorobou (HD).
It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the...
Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant...
Rochester, NY — March 30, 2023 — The Huntington Study Group (HSG) together with its wholly owned subsidiary, HSG Clinical Research, Inc., a world leader in...
PROOF-HD is the only late-stage study in Huntington’s disease targeting clinical progression; topline results expected in early Q2 2023
NAARDEN, Netherlands and...
Dear friend,On March 23rd, 1993, scientists announced the discovery of the gene that causes Huntington’s Disease (HD). The announcement, after decades of research,...
In a key breakthrough, the MENA Organization for Rare Diseases and the International Huntington Association signed a memorandum of understanding during the MENA...
Huntington’s Disease has been steeped in secrecy and fear for generations, leaving people in the community without a voice. This book changes that. Huntington’s...
Join our campaign for Rare Disease Day!
February 28th is Rare Disease Day, where the rare community comes together, finds support and raises awareness for rare...
Roche/ Genentech announce that Phase II GENERATION HD2 study is now open. This is great news for the international community since it is planned to run in 15 countries...