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Aktuálne informácie z Blízkeho východu a severnej Afriky

IHA President Svein Olaf Olsen was keynote speaker on Huntington’s Disease at the MENA Congress for Rare Diseases in Abu Dhabi last month. He spoke of the urgent need to […]

FDA udeľuje spoločnosti uniQure označenie Regenerative Medicine Advance Therapy (RMAT)

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 […]

Existujeme: Tanita Allen rozpráva o svojom boji za prístup ku genetickému testovaniu v Spojených štátoch

In her memoir “We Exist”, Tanita Allen tells of the difficulty she had in having her symptoms correctly diagnosed as Huntington’s Disease. Time and again, she was misdiagnosed because doctors refused […]

Bezplatný online psychoterapeutický program pre ľudí s HD

Doctors at the University of Reading (UK) have developed a free online psychotherapy programme for people with Huntington’s Disease.  It’s part of a research project that looks at how people […]

V Pakistane sa financuje nové združenie pre Huntingtonovu chorobu - HDSOP

Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created.  The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing  list of […]

Spoločnosť SOM Biotech ukončila nábor do štúdie fázy IIb liečby chorey pri Huntingtonovej chorobe

SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical […]

Spoločnosť Prilenia plánuje predložiť žiadosť o registráciu pridopidínu pri Huntingtonovej chorobe v EÚ

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Prelomový objav predstavuje novú nádej pre pacientov s HD

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

Medzinárodná Huntingtonova asociácia je teraz členom Medzinárodnej asociácie pre zriedkavé choroby!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

Spoločnosť uniQure oznamuje aktualizáciu klinických skúšok fázy I/II génovej terapie AMT-130 na liečbu Huntingtonovej choroby

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]