Arhivi

UniQure sporoča, da je FDA podelila imenovanje za prebojno terapijo AMT-130 za zdravljenje Huntingtonove bolezni

~ Breakthrough Therapy designation based on clinical evidence from Phase I/II trials showing meaningful slowing of disease progression ~ ~ Additional regulatory update and guidance on the Biologics License Application […]

Posodobitev študije faze II GENERATION HD2

Roche has announced the continuation of the GENERATION HD2 Phase II clinical trial evaluating tominersen in individuals with early signs of Huntington’s disease. Following an interim analysis by an independent committee, no […]

Konferenca EHA 2025

Z veseljem sporočamo, da bo Evropsko združenje Huntington od 25. do 28. septembra 2025 v Bukarešti (Romunija) organiziralo svojo 5. polletno konferenco. "Skupaj oblikujemo našo prihodnost, mi smo sprememba!" izraža duh konference, ki je bila organizirana v [...]

Niste nemočni: Vračanje nadzora med življenjem s Huntingtonovo boleznijo

Living with Huntington’s Disease (HD) often feels like a series of quiet, and sometimes loud goodbyes. We say goodbye to the way our bodies used to move, to the stamina […]

Pogled nazaj na kongres HDYO 2025

The HDYO Congress 2025 brought together young people, families, researchers, and professionals from around the world for an unforgettable event dedicated to the Huntington’s Disease community. Over three inspiring days, […]

23. marec: Praznovanje dneva hvaležnosti v skupnosti Huntingtonove bolezni

“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease gene in the 1980s, […]

Be Empowered by Tanita Allen, nova rubrika na spletni strani IHA

Tanita Allen, a dedicated advocate for Huntington’s Disease and author of her much labored memoir “We Exist”, is starting a new column for the IHA website, called Be Empowered by […]

Bodite opolnomočeni Tanita Allen: Allen Allen: Iskanje moči na našem skupnem potovanju

Hello, everyone! I am truly honored to introduce myself as the newest columnist for the International Huntington Association’s online platform. Writing for this community is not only a privilege, but […]

Odraščanje s HD: vpogledi in strategije podpore s Siri Hagen Kjølaas

Na lanski konferenci EHDN & Enroll-HD v Strasbourgu smo imeli čast intervjuvati doktorico Siri Hagen Kjølaas, ki je razpravljala o svoji revolucionarni raziskavi o psihosocialnih izzivih, s katerimi se soočajo [...]

Družba SOM Biotech objavi rezultate študije faze 2b

SOM Biotech presents the Phase 2b study results with SOM3355 demonstrating a unique profile with robust improvements of chorea in Huntington’s Disease Patients and a safe profile with no somnolence, […]