Founding of the Huntington’s Disease Society of Pakistan April 24th 2024 Last week another national association was created. The Huntington’s Disease Society of Pakistan (HDSOP) joined the growing list of organisations dedicated to improving the lives of those affected by Preberi več...
SOM Biotech, a clinical-stage drug discovery and development company based on a unique proprietary Artificial Intelligence platform (SOMAIPRO®), is pleased to announce that the recruitment of the Phase IIb clinical study with SOM3355 as a treatment for Huntington’s chorea has Preberi več...
Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael Hayden, CEO of Prilenia “Pridopidine demonstrates consistent treatment benefits across Preberi več...
Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease. They have discovered that two small molecules, called SPI-24 and SPI-77, can effectively reduce mutant Preberi več...
It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only playing an important role in the HD community, but also Preberi več...
~ Bolniki, zdravljeni z AMT-130, še naprej kažejo dokaze o ohranjeni nevrološki funkciji s potencialnimi kliničnimi koristmi, odvisnimi od odmerka, v primerjavi z naravnim potekom bolezni, ki ustreza vključitvenim merilom ~ ~ Povprečni CSF NfL še naprej kažejo ugodne trende pri bolnikih z nizkimi odmerki Preberi več...
Skoraj natanko 18 mesecev po postavitvi diagnoze Huntingtonove bolezni sem se odpravil na evropsko Huntingtonovo konferenco v Belgijo. Dnevi v Blankenbergu so zame postali poučna in občasno tudi pretresljiva izkušnja. Skupnost, sočutje in Preberi več...
Brazilsko Huntingtonovo združenje (ABH - Associação Brasil Huntington) je izjemno dejavno in izvaja številne pobude za skupnost. Takšna stopnja zavezanosti je bistvenega pomena, saj ne koristi le tistim, ki jih je bolezen prizadela, ampak tudi dviguje Preberi več...
Ashley Clarke je tudi ambasadorka mladinske organizacije za Huntingtonovo bolezen (HDYO) in zagovornica skupine HD-Community Advisory Board (HD-CAB), ki predstavlja glas bolnikov pri načrtovanju in izvajanju kliničnih preskušanj. Sledi Preberi več...
Jasmine in Sai sta srednješolki iz ZDA. Sta mladi osebi, ki sta odločeni, da bosta nekaj spremenili in navdihnili druge, da jima bodo sledili. Pobuda za zbiranje sredstev, ki sta jo vzpostavili in vodili, je nedavno zbrala neverjetnih $2000 Preberi več...
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