Arhivi

Družba SOM Biotech zaključuje postopek nabora v študijo faze IIb zdravljenja koreje pri Huntingtonovi bolezni

Podjetje SOM Biotech, ki se ukvarja z odkrivanjem in razvojem zdravil v klinični fazi in temelji na edinstveni lastni platformi umetne inteligence (SOMAIPRO®), z veseljem sporoča, da je nabor v klinično raziskavo faze IIb, v kateri je sodeloval tudi [...]

Prilenia namerava v EU vložiti vlogo za pridobitev dovoljenja za promet za pridopidin pri Huntingtonovi bolezni

Prilenia announced today that they plan to submit a Marketing Authorization Application in the EU for the use of Pridopidine in the treatment of Huntington’s Disease. According to Dr. Michael […]

Odkritje predstavlja novo upanje za bolnike s HD

Scientists from the Weizmann Institute in Israel have published the results of an animal study which holds tremendous promise for the treatment of Huntington’s Disease.  They have discovered that two […]

Mednarodno združenje Huntington je zdaj član Mednarodne organizacije za redke bolezni!

It is official! The International Huntington Association is now a part of RDI, Rare Diseases International. This is a huge step for IHA, as it means we are not only […]

uniQure sporoča posodobitev kliničnih preskušanj faze I/II genske terapije AMT-130 za zdravljenje Huntingtonove bolezni

~ Patients treated with AMT-130 continue to show evidence of preserved neurological function with potential dose-dependent clinical benefits relative to an inclusion criteria-matched natural history of the disease ~ ~ Mean […]

Vpogledi v skupnost HD: Konferenca EHA me je navdihnila: znanje, empatija in spodbuda

Skoraj natanko 18 mesecev po postavitvi diagnoze Huntingtonove bolezni sem se odpravil na evropsko Huntingtonovo konferenco v Belgijo. Dnevi v Blankenbergu so postali kot [...]

Opolnomočenje skupnosti: Povzetek nedavnih pobud brazilskega združenja Huntington (ABH)

The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not […]

Plenarno zasedanje EHDN in kongres Enroll-HD

EHDN in Enroll-HD 2024 je skupni dogodek, ki združuje plenarno zasedanje EHDN in kongres Enroll-HD. Dogodek bo potekal tri dni in bo ponujal priložnost za udeležbo na [...]

Ashley Clarke, zagovornica HD, deli svoje izkušnje na sedežu podjetja uniQure

As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient […]

Dvig proti Huntingtonovi bolezni: kako sta dva mlada srednješolca zbrala $2000 za Huntingtonovo bolezen

Jasmine and Sai are high school students from the US.  They’re two young people who are determined to make a difference and inspire others to follow suit.  A fundraising initiative […]