Arkiv

UniQure meddelar att FDA beviljat AMT-130 Breakthrough Therapy Designation för behandling av Huntingtons sjukdom

~ Breakthrough Therapy designation based on clinical evidence from Phase I/II trials showing meaningful slowing of disease progression ~ ~ Additional regulatory update and guidance on the Biologics License Application […]

Uppdatering av fas II-studien GENERATION HD2

Roche has announced the continuation of the GENERATION HD2 Phase II clinical trial evaluating tominersen in individuals with early signs of Huntington’s disease. Following an interim analysis by an independent committee, no […]

EHA-konferens 2025

Vi är glada över att kunna meddela att Europeiska Huntingtonföreningen kommer att anordna sin 5:e halvårskonferens i Bukarest, Rumänien, den 25-28 september 2025. "Att forma vår framtid tillsammans, vi är förändringen!" sammanfattar andan [...]

Du är inte maktlös: Att återta kontrollen när man lever med Huntingtons sjukdom

Living with Huntington’s Disease (HD) often feels like a series of quiet, and sometimes loud goodbyes. We say goodbye to the way our bodies used to move, to the stamina […]

En tillbakablick på HDYO-kongressen 2025

The HDYO Congress 2025 brought together young people, families, researchers, and professionals from around the world for an unforgettable event dedicated to the Huntington’s Disease community. Over three inspiring days, […]

23 mars: Fira tacksamhetsdagen i Huntingtons sjukdom-communityn

“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease gene in the 1980s, […]

Be Empowered av Tanita Allen, den nya kolumnen på IHA:s webbplats

Tanita Allen, a dedicated advocate for Huntington’s Disease and author of her much labored memoir “We Exist”, is starting a new column for the IHA website, called Be Empowered by […]

Bli stärkt av Tanita Allen: Att finna styrka i vår gemensamma resa

Hello, everyone! I am truly honored to introduce myself as the newest columnist for the International Huntington Association’s online platform. Writing for this community is not only a privilege, but […]

Att växa upp med HD: Insikter och stödstrategier med Siri Hagen Kjølaas

At last year’s EHDN & Enroll-HD Conference in Strasbourg, we had the privilege of interviewing Siri Hagen Kjølaas, Ph.D., to discuss her groundbreaking research on the psychosocial challenges faced by […]

SOM Biotech tillkännager resultat från fas 2b-studie

SOM Biotech presents the Phase 2b study results with SOM3355 demonstrating a unique profile with robust improvements of chorea in Huntington’s Disease Patients and a safe profile with no somnolence, […]