~ Patienter som behandlas med AMT-130 fortsätter att visa bevis på bevarad neurologisk funktion med potentiella dosberoende kliniska fördelar i förhållande till en inkluderingskriterie-matchad naturlig sjukdomshistoria ~ ~ Genomsnittlig CSF NfL fortsätter att visa gynnsamma trender med lågdospatienter Läs mer...
Almost exactly 18 months after my diagnosis of suffering from Huntington’s Disease, I embarked on the journey to the European Huntington Conference in Belgium. The days in Blankenberge became an informative and occasionally overwhelming experience for me. Community, compassion, and Läs mer...
The Brazilian Huntington Association (ABH – Associação Brasil Huntington) is incredibly active and has been conducting numerous initiatives for the community. This level of commitment is vital because it not only benefits those affected by the disease but also raises Läs mer...
The EHDN and Enroll-HD 2024 is a collaborative event combining the EHDN Plenary Meeting and the Enroll-HD Congress. The event will be held across three days, and will offer the opportunity for delegates to hear about the latest advances in basic, translational Läs mer...
As well as being an ambassador for the Huntington’s Disease Youth Organisation (HDYO) Ashley Clarke is an advocate for the HD-Community Advisory Board (HD-CAB), a group that represents the patient voice in the design and conduct of clinical trials. Following Läs mer...
Jasmine and Sai are high school students from the US. They’re two young people who are determined to make a difference and inspire others to follow suit. A fundraising initiative they set up and managed recently raised an incredible $2000 Läs mer...
Efter att ha godkänts av deputeradekammaren förra året publicerades lagförslag 5060/13 slutligen i unionens officiella dagbok förra månaden, den 21 juni, och fastställer den 27 september som den nationella dagen för medvetenhet om Huntingtons sjukdom. Läs mer...
The HD Community already knows Dimitri Poffé’s adventures too well, and now, the world will too. The French traveler who is doing a bicycle trip through all South America to raise awareness for Huntington’s Disease will now have his own Läs mer...
MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 that will be held in Beach Rotana, in Dubai from 16 to 19 May 2024. This conference will be the Läs mer...
MENA Organization for Rare Diseases tillkännager det tredje årliga mötet, MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 som kommer att hållas i Movenpick Grand Al Bustan Dubai från 1 till 4 februari 2024. Denna konferens kommer att Läs mer...
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