Kategori: Haberler

Portekiz'de Ulusal Huntington Hastalığı Günü

Today, 15th June, is National Huntington’s Disease Day in Portugal. To honour this special date, we have a message from the Portuguese association, Associação Portuguesa de Doentes de Huntington (APDH) […]

Mayıs Farkındalık Ayı!

It’s May Awareness Month! Each year, the global Huntington’s community unites during the month of May in a shared mission to raise awareness for the thousands of people affected by […]

PRILENIA, PROOF-HD ÇALIŞMASININ SONUÇLARINI AÇIKLADI: UMUT VERİCİ AMA KARIŞIK SONUÇLAR!

Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.  This […]

HSG ve HD-CAB Küresel Hasta Danışma Kurulu Sağlamak için İşbirliği Yapıyor

Rochester, NY — March 30, 2023 — The Huntington Study Group (HSG) together with its wholly owned subsidiary, HSG Clinical Research, Inc., a world leader in conducting clinical trials for Huntington’s […]

Prilenia, Huntington Hastalığı için Faz 3 PROOF-HD Klinik Çalışmasında Son Hasta Ziyaretine Ulaştı

PROOF-HD is the only late-stage study in Huntington’s disease targeting clinical progression; topline results expected in early Q2 2023 NAARDEN, Netherlands and WALTHAM, Mass., 28 March 2023 – Prilenia Therapeutics B.V., a […]

Huntington'ın Minnettarlık Günü 2023

Dear friend,On March 23rd, 1993, scientists announced the discovery of the gene that causes Huntington’s Disease (HD). The announcement, after decades of research, made evident the partnership of ‘families living […]

MENA Nadir Hastalıklar Örgütü ve Uluslararası Huntington Derneği benzersiz bir işbirliğiyle güçlerini birleştiriyor!

In a key breakthrough, the MENA Organization for Rare Diseases and the International Huntington Association signed a memorandum of understanding during the MENA Organization for Rare Diseases annual meeting 2023, […]

Nadir Hastalıklar Topluluğu 28 Şubat Nadir Hastalıklar Günü İçin Kitap Yayımlamak Üzere Bir Araya Geliyor

Huntington’s Disease has been steeped in secrecy and fear for generations, leaving people in the community without a voice. This book changes that. Huntington’s Disease Heroes features twenty-six people from […]

Nadir Hastalıklar Günü 2023 Kampanyası

Join our campaign for Rare Disease Day! February 28th is Rare Disease Day, where the rare community comes together, finds support and raises awareness for rare diseases across the globe […]

GENERATION HD2 çalışması hakkında Roche/ Genentech güncellemesi

Roche/ Genentech announce that Phase II GENERATION HD2 study is now open. This is great news for the international community since it is planned to run in 15 countries (Argentina, […]