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网络研讨会 - 为亨廷顿探索。迪米特里-波菲在拉丁美洲的冒险之旅

To finish May Awareness Month in the most inspiring and hopeful way possible, the International Huntington Association and European Huntington Association had a webinar with Dimitri Poffé, a Huntington’s Disease […]

为亨廷顿氏症点亮灯光 2022年

It’s HD May Awareness Month and HDSI (Huntington’s Disease Society of India) is celebrating it with HD light-up, by lighting up buildings of proeminence in order to express solidarity with […]

波兰和比利时带头努力帮助乌克兰高清家庭 

If the situation in Ukraine isn’t desperate enough, spare a thought for those with the added burden of Huntington’s Disease. Danuta Lis, president of the Polish HD Association and Bea De […]

网络研讨会--关于Proof-HD你需要知道的一切

Yesterday, Prilenia hosted a webinar updating on the Phase III trial with Pridopidine. Thank you to everyone who join and a special thanks to our speakers, Michael Hayden, Andrew Feigin, […]

第一届中东和北非罕见病会议

2 月 18 日至 20 日，迪拜将举办首届中东和北非罕见病会议，国际亨廷顿协会是此次会议的科学合作伙伴。 该会议 [...]

HDYO将推出JOIN-HD，即青少年发病的HD全球登记处。

HDYO will launch JOIN-HD, the Juvenile onset HD Global Registry, that will be open for Stage 1: Open Enrollment, starting February 4th.  JOIN-HD is a global registry that collects experiences […]

HDYO的国际青少年虚拟大会

Welcome to HDYO’s International Young Adult Virtual Congress March 5-6, 2022! After the success of our first event, we’re hosting another virtual congress! Join us for two days of sensational […]

以身作则的学习。HD-JUNIOR是一个全国性的青少年亨廷顿病患者登记处。

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of […]

突发新闻--罗氏计划开展新的托米诺森研究

Some encouraging news has just come in from Roche.  Analysis of the results of Roche’s Phase III GENERATION HD1 trial, which was stopped in March 2021, has found that a […]

向一位伟人致敬--格瑞特-多默霍尔特

It is with great sadness we announce the passing of one of our founders.  Gerrit Dommerholt passed away in the Netherlands on the 31st December.  Gerrit’s contribution to HD can hardly […]