International Huntington Association

A Global Effort to Help People With Huntington's Disease

A non-profit umbrella organization established in 1974 by Marjorie Guthrie. It now represents more than 250 000 individuals and member associations all over the world

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INTERNATIONAL HUNTINGTON ASSOCIATION

For five decades, the International Huntington Association has been supporting the global HD community. Our 50th-anniversary celebration marks not only a milestone in our history but also the beginning of important new initiatives, projects aimed at furthering our impact, reaching ever more people and bringing hope and comfort to all.

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HD FOCUS: NEWS ACROSS THE GLOBE

A dedicated news platform that gathers the latest updates from local Huntington's disease associations and key global resources. Our goal is to provide the HD community with timely, relevant, and insightful news from across the world, helping families, caregivers, and advocates stay informed and connected. Stay up to date with the latest advancements in research, support initiatives, and community stories.

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HD BLOG

HD is a complex disease, and even with a lot of information available today, we believe that something is missing: personal stories. Feelings, advice, choices, ideas, indecision, mechanisms, and thoughts all need a space to be shared. Therefore, HD Blog was created to provide such a place. The community is essential because it helps us understand that we are not alone in our struggles as others feel the same way we do.

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HDYO INTERNATIONAL CONGRESS IS BACK!

This in-person event, happening from 14-16 of March in Czech Republic, is designed by young people impacted by Huntington’s disease for young people impacted by Huntington’s disease.

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Volunteer in IHA

If you want to help the Huntington's Disease community, we are looking for people willing to join forces and create something together

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Want to set up your local association?

If you want to start your own association to support HD, we can help you understand how

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You can help us make a difference

Your donation will help us supporting individuals and families that are affected by HD

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INTERNATIONAL HUNTINGTON ASSOCIATION

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